Pediatric Services Adult Services Pediatric Services Assistive Technology Services Teaching and Research What are the Pediatric Services Pediatrics at the SCCR consists of two specialized services: Pediatric Neurodevelopmental Services Pediatric Neuromotor Services Both services provide on site (at SCCR), outpatient and outreach (off site) services. The Neuromotor Team provides inpatient care which is at the discretion of the Physiatrist. Services are offered in both official languages (English and French) and are accessible to children from birth to adolescence. Pediatric Neurodevelopmental Service Pediatric Neuromotor Service Neuromotor Speciality Clinics Neuromotor Specialty Services What is the Neurodevelopmental Service? We are an interdisciplinary team of professionals who work together to support children and youth with a complex neurodevelopmental disorder by working collaboratively with local clinicians. Our team takes a family-centred approach by valuing individual needs and differences to optimize quality of life. Support provided is unique to the individual and their family/care team. Who We Are Our team is comprised of many different professionals with representation from: Behavior Analyst Occupational Therapy Social Work Speech-Language Therapy Nursing Clinical Dietetics Education Developmental Pediatrics Who We Help We work with clients and community clinicians from across New Brunswick and offer services in French and English. We also use language interpretation services to work in any language preferred by our clients. This service works with children/youth, 17 years of age and younger, who meet the following criteria: Severe neurodevelopmental impairment Involved with local/regional educational and therapeutic services, but still requiring support for complex challenges pertaining to their development We do not accept referrals for children/youth whose primary concerns are: Mental health, behavioural or learning difficulties that are not associated with severe developmental impairment Services We Offer Our team mandate is to offer tertiary services, acting as consultants, providing assistance to caregivers, therapists, educators and other professionals who are working with the children and youth on a regular basis. We can also help with resource connection. It is important to note that our team does not provide direct therapy services. Our services can be accessed through 3 referral sources: 1) Pediatrician, Neurologist, Physiatrist or Psychiatrist Involvement of the SCCR Pediatric Neurodevelopmental Service therapists will be determined following Developmental Pediatrics consultation. 2) Local/Regional therapist or clinician Consultation to support therapist/clinician’s intervention 3) School District team member Consultation to support school/district team’s programming Consultation Requests Our intake/referral expectations include that referring physicians, pediatricians, family physicians and local therapeutic and educational teams play an active role in the treatment of the individual being referred. Referrals for Developmental Pediatrics can be made by a Pediatrician, Neurologist, Physiatrist or Psychiatrist. Pediatric Neurodevelopmental Services Referral Letter Contact Information Attn: Neurodevelopmental Service Stan Cassidy Centre for Rehabilitation 800 Priestman Street Fredericton, New Brunswick, E3B 0C7 Tel.: 506-452-5225 Fax: 506-452-5727 Email: Emely.Lemaire@HorizonNB.ca Who We Are The Paediatric Neuromotor team is made up of professionals in the fields of: Physiatry (physicians with a specialty in physical medicine and rehabilitation) Occupational Therapy Physiotherapy Speech-Language Pathology Dietetics Social Work Psychology Nursing Recreation Augmentative Communication & Education The team is led by a manager and supported by rehabilitation assistants, an administrative assistant and scheduling coordinator. The Paediatric Neuromotor Team also includes the child’s family, caregivers, school, and local clinicians. The goal of the team is to help children maximize their potential. We work together to find effective and practical solutions to meet the child’s needs. Who We Serve The Paediatric Neuromotor Team accepts referrals for children with neurological diagnoses (i.e., Cerebral Palsy, Neuromuscular Disease, Genetic Syndromes, Spinal Cord Injuries, Brain Injuries, etc.) Referrals can be initiated by therapists, school, parents, and other individuals, but must be signed by a physician or nurse practitioner. All referrals must be accompanied by medical and therapeutic documentation. Photo caption: Neuromotor Team occupational therapist observes her patient making pizza with his father in the Paediatric kitchen. What We Do We have a provincial mandate and as such serve the entire province of New Brunswick. Service to our clients is provided in their language of choice. We do not carry a caseload of our own. Rather, we provide assistance to caregivers, local teams and teachers who are working with our clients on a regular basis. Our team can help by providing assessments, consultation and/or training. We support children’s rehabilitation programs by providing consultation, evaluating specialized equipment, providing short periods of intensive therapy or by visiting children in their own school or home. Children may be seen on an inpatient, outpatient or outreach basis. They could be seen by a single service or by an interdisciplinary team. We are family centred and we strive to provide services that meet the needs of our clients. Once we accept a referral, we look at the clients overall needs and set up an initial appointment that is of beneficial length and includes the appropriate team members. Services are prioritized based on urgency of need. We also reach out to families prior to the visit to discuss their goals, concerns and to plan for the visit. With permission we also reach out to local professionals involved. Single Service Appointments Our single service appointments could include Occupational Therapy, Speech-Language Pathology, Physiotherapy, Dietetics, Psychology, Recreation, Augmentative Communication, Education & Social Work Occupational Therapy Works with you and your child to promote participation, access and safety during daily activities, leisure pursuits, and in becoming a member of their community as a student, volunteer, friend, worker and / or family member. Speech-Language Pathology Works with clients to identify solutions for communication, swallowing and learning issues within the context of each client’s condition. We promote independence by teaching and maintaining new skills and finding adaptive strategies like an augmentative communication system. Physiotherapy Our physiotherapy team provides assessments to identify your child’s physical impairments or disabilities. Promotes independence through the development of appropriate functional skills, adaptive strategies and education to family and caregivers. Dietetics Our team’s dietitian works with clients, their families and caregivers to learn how food and nutrition can support health and improve quality of life. They assess height, weight and what your child eats in a day. Psychology Our psychologist provides services such as neuropsychological and psychodiagnostics assessments to children with a wide range of complex neuromotor impairments. These may include identifying cognitive changes overtime. The psychologist can also help with behavior and emotional concerns in relation to the child’s medical condition, for instance by providing consultation/intervention services for disruptive behavior, acute/chronic pain management, anxiety about medical procedures, or treatment adherence, while also offering recommendations that will help in the home, school, and community settings and for future planning. Social Work Our Social Workers provide consultation, education, counselling and support while also connecting families to resources and services. They assess and identify client and family needs, including socio-economic concerns, family coping and social support systems. They liaise with community partners, provide advocacy support and help families navigate systems of services and transitions in care. Our Social Workers are able to meet with parents and caregivers to discuss matters that are important to the family. Recreation Our team’s Recreation Therapist with clients and their families to learn about and explore options to optimize their quality of life. Whether it be playing a musical instrument, being physically active, going to the beach, or playing video games- the Recreation Therapist is there to support each client to explore his/her interests and access to recreation and leisure. Augmentative Communication Our Speech-Language pathologists work with you and your child, your local team, other clinicians on our team to identify strategies and devices for your child to be able to communicate besides talking. This might replace or supplement speech. There are no-tech, low tech and high-tech options and it is important to find the right one(s) for your child. Technology Access Our Occupational Therapist works with you, your child, and other clinicians to find ways your child can use technology to play, learn, communicate, and participate. From using a simple switch to electronic eye tracking, we identify the best solution for every child to be successful and have opportunities that may not be possible without technology. Every child has unique interests and needs and these will change as your child develops new skills or possibly encounters new challenges. We will be there along the way to optimize your child’s opportunities and quality of life. Education Liaison Our team’s Education Liaison works to facilitate a dynamically collaborative relationship between the SCCR and school/district teams. The goal is to support the SCCR team to ensure the child or youth has the best possible experience at school from a rehabilitation perspective. This can be achieved by participating in SCCR visits, assisting the team in sharing recommendations to the school or district and participating in outreach visits. The education liaison can also meet with parents and caregivers to share school related processes if they have questions or concerns. Team Service Appointments Our team service appointments include team evaluations, rechecks and intensives. These visits could range anywhere from half a day to two weeks. Before a team visit, we consult with caregivers and professionals. During the visit, designated members of the team work together, focusing on the goals of the child and family and on the areas most needing assistance. The result is a verbal summary to caregivers, followed by a written report describing our impressions and recommendations. We may also provide treatment or training materials in the form of pictures or handouts. We encourage caregivers and local professionals to attend appointments at the Stan Cassidy Centre in order to optimize treatment planning and facilitate communication between all of the people involved in a child’s daily life. Video and teleconferencing options are also available to enhance communication. Photo caption: This young Paediatric Neuromotor patient (centre) sits with his interdisciplinary team during his last appointment at SCCR. What To Expect Before a visit, we consult with caregivers and professionals. During the visit, designated members of the team work together, focusing on those areas most needing assistance. The result is a verbal summary to caregivers, followed by a written report describing our impressions and recommendations. We may also provide treatment or training materials such as pictures, handouts, or a videotape of therapy sessions. We encourage caregivers and local professionals to attend appointments as the Stan Cassidy Center in order to optimize treatment planning and facilitate communication between all of the people involved in a child’s daily life. Video and teleconferencing options are also employed to enhance communication. Contact Us For more information on our services, how to refer, the status of your referral, or your appointment, please contact our resource-scheduling coordinator at 506-447-4078. Attn.: Paediatric Neuromotor Team 800 Priestman Street Fredericton, New Brunswick E3B 0C7 Tel. 506-447-4078 Fax: 506-443-2600 The Neuromotor Speciality Clinics include the following: Feeding Consultation Services Neuromuscular Disease Clinic Orthotics Clinic Tone Management Clinic Orthopaedic Clinic Feeding Consultation Service The Feeding Consultation Service consists of speech language pathology, dietetics and occupational therapy. Therapists are involved in assessment and consultation, based on the needs of the child, family, and local team. Who we help: Children with neurological conditions paired with any of the following concerns: A child who is at risk of choking and requires further assessment. A child who is tube fed and the family/local team are interested in exploring the transition to oral feeds. A child who is at risk nutritionally due to problematic feeding (accepts less than 20 foods). Local therapists who are looking for consultation. Neuromuscular Disease Clinic The Neuromuscular Disease Clinic provides services and support to children and their families affected by a variety of neuromuscular disorders. We use a holistic and family-centred approach to care. Our goal is to help children and adolescents maximize their potential. We work together as a team to find effective and practical solutions to meet your child’s needs. Orthotics Clinic Orthotic leg braces are made with plastic materials or carbon fibers, which fit around part of the lower leg and foot. Orthoses can be custom made by a certified orthotist or ordered prefabricated. At the Orthotics Clinic, a team of health care professionals, such as the physiotherapist, physiatrist and Orthotist will assess the child’s orthotics needs. A management plan will be developed together with the family and caregivers. Orthotics Clinics are provided on-site and in certain outreach locations around the province. What are orthoses used for? Orthoses can be used to help a child who is already walking to walk better by improving the movement, position and support of the ankle and foot and lower extremities. For example, children who walk on their toes may come down on their heels when wearing orthoses. As well, children who drag their feet when they walk may be able to pick up their feet when wearing orthoses. They can also be used to improve the position of the feet for someone who is sitting or standing. Tone Management Clinic Children with a neuromotor diagnosis may have symptoms such as increased or decreased muscle tone, decreased muscle strength or movement coordination issues that eventually contribute to muscle length and/or joint motion issues. This in turn may impact a child’s mobility. In Tone Management Clinic, motion analysis technology is used to help assess mobility issues. This includes Video Observational Gait Analysis and upper extremity video assessments such as the Assisting Hand Assessment for children with hemiplegia. Physiotherapists, occupational therapists and physiatrists provide a coordinated approach to a comprehensive assessment and treatment plan to address the child’s mobility issues and the family’s concerns. The clinic may include treatment procedures such as Botox Injections, Serial Casting, Taping, and Splinting. Consultation with local physiotherapists or occupational therapists regarding therapeutic programs is an important part of Tone Management Clinic. From this clinic, the child may be referred to Orthopaedic clinic for further consultation regarding muscle and joint contracture management. Children with elevated muscle tone, meeting the criteria, may be referred to a specialist such as a neurosurgeon who can assess for other interventions such as Selective Dorsal Rhizotomy or Intrathecal Baclofen pump. Orthopaedic Clinic The Orthopaedic Clinic is an interdisciplinary clinic held on-site at SCCR, in partnership with the orthopaedic program at the IWK Health Centre. Children are assessed by SCCR clinicians, physiatry and by a visiting Orthopaedic Surgeon from the IWK for musculoskeletal monitoring and management. Musculoskeletal issues can affect a child’s mobility, positioning, and comfort. Clinics are run multiple times throughout the year at the SCCR. Children may be referred to the Orthopaedic Clinic by SCCR physiatry. Hip surveillance, which monitors hip health for children with Cerebral Palsy, is provided by our Centre and Xray reviews and examinations are often done as part of the Orthopaedic clinic. Single event multi-level surgery (SEMLS), which addresses orthopaedic issues at multiple joint levels in one surgical event, may be discussed through this clinic, as well as other single level orthopaedic procedures. Specialty Services Adapted Swim Clinic Adapted Bike Program Augmentative and Alternative Communication Adapted Video Gaming Surgical Planning Program Serial Casting and Splinting Adapted Swim Clinic The SCCR Adapted Swimming Program consists of an aquatic therapist/recreation therapist, occupational therapists, physiotherapists, and rehabilitation assistants. It is offered several times per year in locations throughout New Brunswick. The ultimate goal is to get children safely in the water, to be able to swim for fun and for therapy. The water is magical when it is hard to move your body on land, and this program is fully funded to make swimming an option for all abilities. Adapted Bike Program The SCCR Adapted Bike Program began in 2012 and consists of physiotherapists, occupational therapists, rehabilitation assistants and equipment vendors. Bike clinics are offered once or twice a year on-site, as well as individual assessments as needed. Each child is evaluated for an adapted tricycle/bicycle that specifically fits their needs. The program is fully funded allowing biking as an option for children with all abilities. Augmentative and Alternative Communication Our speech-language pathologists work with you, your child, and your local team to identify strategies and devices to enhance your child’s communication. This might supplement or replace speech. There are no-tech, low tech, and high-tech options. It is important to have an assessment to find out the right options for your child. Adapted Video Gaming The Game Changers Team consists of a team of an occupational therapy, recreation therapy and rehabilitation engineering. Video gaming is an equalizer to allow our clients the ability to run, jump and play with customized controllers and set-ups. The clinic provides a variety of options and set ups to meet the physical needs and game interests of the client. Surgical Planning Program If a child is referred for orthopaedic or neurosurgery from our Centre, the surgical procedures often occur out of province, typically in Nova Scotia at the IWK or sometimes in the province of Quebec. The surgical planning program at SCCR is designed to help ease the complexity and stress of having surgery out-of-province and can help families navigate issues such as post-operative equipment, bracing, home access and school re-entry as well as provide social supports and help with coping. Serial Casting and Splinting Serial casting is the use of a series of progressive casts to increase muscle length using low load prolonged stretch to shortened muscle tissues. Serial casting is most commonly used for the ankle and foot and application of the casts is done by physiotherapy and a rehab assistant. For example, a child with tight calf muscles may benefit from serial casting. In this case a below knee walking cast is placed on the ankle-foot for approximately 5 days. The cast, often made of semi-rigid fiberglass, is then removed at home prior to the child’s return to the Centre for the next cast. Typically, a set of 3 casts is booked. Lengthening muscles may also have the benefit of lowering high muscle tone in the area as well. Splinting, using thermoplastic and neoprene, can help maintain or increase soft-tissue length in the upper extremities or lower extremities. Many splints are used night-time for this purpose. Day-time splints may also help with functional activities. A child may be referred to an occupational therapist or physiotherapist for splinting at our Centre.