Teaching and Research Stan Cassidy Centre For Rehabilitation Therapeutic Services Pediatric Services Rehabilitation Physician (Physiatrist) Research Teaching Research Overview The Stan Cassidy Centre is an active site for local, national, and international clinical studies involving persons who have neurological and neuromuscular injuries and diseases. Research includes trialing new medications in both Blinded and Open-Label studies, and studies with an overall focus on translating discoveries and knowledge into better healthcare practices. Studies are carried out by our research team on-site and in partnership with collaborators. Our Team Dr. Colleen O’Connell, SCCR Medical Director & Research Chief Our Research Department is led by our medical director and research chief, Dr. Colleen O’Connell. Other team members include our Research Manager, Registered Nurses, and Research Assistant. Undergraduate and medical students are hosted each summer as research trainees. The Research Department has support and participation from other disciplines at SCCR, including Physiatry, Occupational Therapy, Physiotherapy, Psychology, Recreation Therapy, Nursing, and more. Why Participate in Research Today’s practices and treatments are available thanks to people just like you who got involved in research. Here’s how you can get involved: Ask about research during your inpatient stay, outpatient appointments, or contact our centre to be connected to our Research Department. Participate in research. If you are asked about participating in one of our studies, please consider it! Participating in research may or may not benefit you personally, but it does contribute to new knowledge that will help others. Partner with research. Our research team and our partners are committed to engaging persons with lived experience, family members, and caregivers in all aspects of research, from coming up with ideas to designing studies to sharing results. Our Research SCCR typically has an ongoing number of active projects focused on several diagnoses. Our research surrounds practice-changing research, which redefines the way patient care is practiced and managed at SCCR and around the world. We identify questions that are important to clinicians and patients, then design and perform trials to provide the needed evidence to inform practice. Examples of research include: Comparing the safety and efficacy of commonly used treatments Establishing the effectiveness of emerging therapies Studying better ways to prevent, diagnose, and manage diseases Developing better ways to deliver health care, especially to disadvantaged or vulnerable populations Using implementation science to accelerate the integration/translation of research into practice and policy Research Ethics The Human Research Protection Program (HRPP) is an institution-wide review and education process for research conducted at Horizon Health Network to ensure the protection of research participants’ rights. For more information, please visit: The Human Research Protection Program (HRPP) Are you interested or have questions? Shane McCullum, SCCR Clinical Research Manager For any inquiries involving active or upcoming studies, or whether any of our studies apply to you, contact our Research Manager, Shane McCullum. Contact Us Attn.: SCCR Research 800 Priestman Street Fredericton, New Brunswick E3B 0C7 Tel.: (506) 447-4379 Fax: (506) 452-5190 Email: Shane.A.McCullum@HorizonNB.ca Scientific Publications All hands on deck: the multidisciplinary rehabilitation assessment and management of hand function in persons with neuromuscular disorders Respiratory and Bulbar Support in Spinal Muscular Atrophy Type I Treated with Nusinersen An exploratory qualitative assessment of patient and clinician perspectives on patient-reported outcome measures and disease-modifying therapies in adults with spinal muscular atrophy Thinking outside the box: A re-evaluation of Canadian recommended outcome measures in adult spinal muscular atrophy–report of a national consensus workshop Poster (Clinical/Best Practice Implementation) ID 1981325 Exploring virtual reality exergaming for aerobic exercise in spinal cord injury Patient reported outcome measures in adult spinal muscular atrophy: a scoping review and graphical visualization of the evidence Refining items for a preference-based, amyotrophic lateral sclerosis specific, health-related quality of life scale Patient reported outcome measures in adult spinal muscular atrophy: connecting the dots Management of sleep-disordered breathing in three spinal cord injury rehabilitation centres around the world: a mixed-methods study A Canadian adult spinal muscular atrophy outcome measures toolkit: results of a national consensus using a modified delphi method The Canadian Neuromuscular Disease Registry 2010–2019: a decade of facilitating clinical research through a nationwide, pan-neuromuscular disease registry A National Spinal Muscular Atrophy Registry for Real-World Evidence Implementation of pain best practices as part of the spinal cord injury knowledge mobilization network Implementation of pressure injury prevention best practices across 6 Canadian rehabilitation sites: results from the spinal cord injury knowledge mobilization network Predictive value of the pendulum test for assessing knee extensor spasticity Evaluation of a toolkit for standardizing clinical measures of muscle tone Managing the Anticoagulated Patient with Spasticity? A Delphi-based Canadian Consensus Statement Quantification of elbow muscle tone from an instrumented manual stretch-reflex test A Toolkit for Objective Clinical Outcome Measures of Muscle Tone Elbow spasticity during passive stretch-reflex: clinical evaluation using a wearable sensor system Quantitative Clinical Assessment of Muscle Spasticity using Wearable Sensors Collaborations Praxis Rick Hansen Institute University of New Brunswick Institute for Biomedical Engineering Canadian Neuromuscular Disease Registry Spinal Cord Injury Network of Atlantic Provinces (SCINAPS) Muscular Dystrophy Canada ALS Canada The Neuromuscular Disease Network for Canada (NMD4C) Dalhousie Medicine New Brunswick Clinical Psychology Residency Program This Residency program offers opportunities to learn in several settings, including the Stan Cassidy Centre for Rehabilitation!